About The MDS Foundation

About The MDS Foundation

The Myelodysplastic Syndromes Foundation was established to provide an ongoing exchange of information relating to MDS.

The MDS Foundation is a global non-profit advocacy organization that for nearly 30 years has supported patients and their families as well as healthcare providers in the fields of MDS and its related diseases. The Foundation was established to provide an ongoing exchange of MDS related information, before such networks in MDS existed.

Since its inception, we have conducted 16 international symposia in Austria, United Kingdom, the United States (Chicago, IL; Washington, DC), Spain (Barcelona; Valencia), Czech Republic, Sweden, France (Paris; Marseille), Japan, Italy, Greece, Scotland, Germany, Denmark and Canada. The 18th International Congress will be held in Rotterdam, The Netherlands from 7-10 May 2025.

A major Foundation effort is our international information network. This network provides patients with referrals to Centers of Excellence, contact names for available clinical trials, sharing of new research and treatment options between physicians, and extension of educational support to physicians, nurses, pharmacists, and patients.

In response to the needs expressed by patients, families, and healthcare professionals, we have established patient advocacy groups, research funding, and professional educational initiatives.

The MDS Foundation is a publicly supported organization, exempt from federal income tax under section 501(C)(3) of the IRS code.

For more information please visit our website: www.mds-foundation.org